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The Cure is

in Sight.

Your Support could be life-saving. BethanysCure is raising funds for human clinical trials in 2018 that could finally put an end to MLD.

We Can’t

Quit Now.

We’ve built the research lab. We’ve found the doctors. They’ve set their sights on a cure. We need YOUR help to fund five clinical trials and finish the story.

Every year, around the world, 3,300 children are born with MLD

Learn More

MLD or Metachromatic Leukodystrophy is a rare inherited neurometabolic disorder which affects the myelin sheath in the brain. Without an intact myelin sheath, there is a breakdown in communication between the nerves and the brain causing loss of acquired functions, paralysis, blindness, seizures, and leading to eventual death.

The Bethanys Hope Foundation, established by Lindey and Dave McIntyre, has been fundraising for 20 years to find a cure for MLD which took the life of their daughter Bethany in 2000 at the age of 7. Over this time, major advancements in genetic research have been achieved, including what is believed to be a very real possibility of a cure – a genetic therapy that delivers a single enzyme dose to the brain that can stop the progression of the disease.

This genetic therapy is now ready testing in five human clinical MLD trials. The Bethanys Hope Foundation now needs to raise $1.7 million to fund these clinical trials by 2018 through a campaign called Bethanys Cure.

Every year, around the world, 3,300 children are born with MLD

Learn More

MLD or Metachromatic Leukodystrophy is a rare inherited neurometabolic disorder which affects the myelin sheath in the brain. Without an intact myelin sheath, there is a breakdown in communication between the nerves and the brain causing loss of acquired functions, paralysis, blindness, seizures, and leading to eventual death.

The Bethanys Hope Foundation, established by Lindey and Dave McIntyre, has been fundraising for 20 years to find a cure for MLD which took the life of their daughter Bethany in 2000 at the age of 7. Over this time, major advancements in genetic research have been achieved, including what is believed to be a very real possibility of a cure – a genetic therapy that delivers a single enzyme dose to the brain that can stop the progression of the disease.

This genetic therapy is now ready testing in five human clinical MLD trials. The Bethanys Hope Foundation now needs to raise $1.7 million to fund these clinical trials by 2018 through a campaign called Bethanys Cure.

Bethany’s struggle may have ended, however her legacy of hope endures and continues to inspire a community to find the answers to eliminate this wretched disease known as MLD. The MLD Clinical Trials, when approved, will take place in London, Ontario at the Children’s Hospital at London Health Sciences Centre with patients from all over the globe. BethanysHope has launched the “Be on the Team for 2018” campaign, and we are counting on the generous support from ‘Team Members’ all over the world to find a cure for MLD once and for all.